Team JackApr 302 min2024 NKH Conference Earlier this month, Molly and Aunt Katie attended the annual NKH Conference hosted by the NKH Crusaders. This was our 2nd time attending...
Team JackMar 203 min2023 in Review: A Recap of Last Year 2023 was another busy year. In February our dear friend, Joe Rioff, and our new friends at TILT Crossfit hosted an incredible Rowathon to...
Team JackFeb 82 minFeeding Tube Awareness WeekBet you didn't know there's a Feeding Tube Awareness Week! We certainly didn't but we're so glad a week exists to raise awareness and...
Team JackJan 303 minThe Symptoms of NKH: Seizures Once a month from now until NKH Awareness Day (May 5th), we're going to shine a light on some of NKH's most burdensome symptoms, starting...