Earlier this month, Molly and Aunt Katie attended the annual NKH Conference hosted by the NKH Crusaders. This was our 2nd time attending...

2023 was another busy year. In February our dear friend, Joe Rioff, and our new friends at TILT Crossfit hosted an incredible Rowathon to...

Bet you didn't know there's a Feeding Tube Awareness Week! We certainly didn't but we're so glad a week exists to raise awareness and...

Once a month from now until NKH Awareness Day (May 5th), we're going to shine a light on some of NKH's most burdensome symptoms, starting...